So, it’s been long time since last post. I started this blog thinking it would help to off-load my emotions into the virtual space, where probably nobody would ever read it. And it does help, but in the middle of all of the events I didn’t even have time to write.
A lot has happened. And nothing changed at the same time. We are still going through chemo. It’s still cancer. He still have seizures.
But… it’s spring now. The sun is shining finally. Even if not inside, definitely outside. I have better and worse days. I still have the fear in my heart. So, last entry was 5th March…. it was shortly after the 3 seizure night. I was in a very very very bad place then. I can’t remember exactly when things happened, but I started online CBT course. That I still continue but it’s not very helping. I think overall to manage worry and anxiety would be good. And I’m sure some tips can be useful and worth remembering. But… it hasn’t helped in this situation much. Maybe it gave me an illusion that I was doing something??
I’ve seen GP and started antidepressant. I wasn’t a complete believer in antidepressants before, but I was desperate. They do work. It did help. It took the edge out of things. But you need to have a good one, I tried one before and it made me feel horrible. The side effects weren’t worth it. It gave me suicidal thoughts. The one I’m taking now makes me slightly numb…. like I cannot feel extremes. I haven’t got panic attacks anymore. And for a while I felt pretty good until the seizures happened again. Then I questioned if my dose was enough as although no panic attacks, I still have the fear in me. And the anxiety.
I started counselling. That’s really helpful! At first I haven’t been sure where this would go. We started from exploring childhood etc But things started to fit into one piece. I can see connections, what has shaped me. I can be more critical to what I’m thinking and saying and why I do that. We also talked about seizures and it helped to tame them a bit. They are like a beast…. they need taming.
But one things hasn’t changed… chemotherapy. My husband had adjustments… change of anti sickness medications, reduced steroids. But chemo is still a bitch. Yes, it kills cancer. It’s out only chance, but it’s a bitch. I can’t describe how it feels to have it but I can say that watching someone going through it is horrible. It takes all the energy out. It makes you sick. It has an impact on all the family. It is a root of the fears. I know he hates it with passion. 8 cycles. 8 intravenous doses of drug. 112 days of tablets. 1344 tablets to take. We are on round 3, not even half way and it already makes it soooo difficult to see through and past it. You are washed out, you are sick, you have hypersensitivity to cold. Pins and needles all the time. You are fed up. You are agitated. You are tired. You are there but you are absent. Life goes by – you want to take a part but can’t.
But we are warriors. We fight to get to the light in the end of the tunnel. To live. To travel, to go and eat in a Michelin star restaurant. To see our daughters growing up. To have grandchildren. We fight to live.